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Research Surveys and Opportunities

The Utah Parent Center receives many requests to distribute or advertise research and research surveys to our constituency through our email list.  We have set up this web page to provide links to those opportunities to those who may be interested in participating.  Some surveys or opportunities that are provided by our partners or funders may also be sent directly to the email list.

Current Opportunities

  • Adaptive physical recreation and social connections contributing to overall well-being
    • Who can participate? We are looking for youth who meet the following criteria:
      • 15–17 years old with a physical disability, neurological condition, or neuromuscular condition.
      • Able to read, understand, and provide assent to the study procedures.
      • We want to hear from everyone—both teens who are highly active in adaptive sports/recreation, and those who participate less frequently.
    • What is involved?
      • Step 1 (Parent/Guardian): A parent or guardian will need to complete a brief online pre-screening survey to confirm eligibility, which takes about 10 minutes.
      • Step 2 (Youth Survey): Eligible youth will complete a confidential online survey that takes about 20-25 minutes.
      • Step 3 (Optional Interview): A smaller group of youth participants will be invited to share their thoughts in a follow-up online interview lasting about 45-60 minutes.
  • Parent Empowerment Project - Utah Regional Leadership Education in Neurodevelopmental Disabilities Utah Regional Leadership Education in Neurodevelopmental Disabilities (URLEND) program is conducting an online research study focused on understanding parents with intellectual disabilities in their parenting journey. We believe that their unique perspective and experiences can contribute significantly to the success of our project. Parent's participation in this study is invaluable, as it will help us gain insights that can positively impact the lives of parents with intellectual disabilities.  Contact Hailee by email at hailee.hill@utah.edu or call 307-689-8893
  • MENU Study - for families waiting for Autism diagnosis or services for children 0-8. University of Maryland, Baylor University, University of Texas at Austin

Researchers at the University of Texas, Baylor University, and University of Maryland are excited to invite families of young children (age 0-8) who are waiting for an autism diagnostic evaluation or related services (e.g., ABA) to participate in the MENU Study. This 10-week program is conducted entirely over Zoom, so families can participate from home. The program is designed to provide support and resources while waiting for evaluations or services in the areas of (1) parent mental health, (2) child’s challenging behaviors, and (3) child’s social communication skills.  If you have any questions, our study team is happy to help: menustudy@utexas.edu

Over the course of a four-week program, families in the Happy Families project get information about conflict and how it can impact marital and parent-child relationships, as well as information on how to resolve conflict and have more productive conversations as a couple and between parents and children. Participation also includes: Access to research-based information about family communication and conflict, contributing to research by completing surveys and Zoom sessions with our team, and the chance to earn up to $150 for completing the program Who is eligible to participate? Single-parent and two-parent families with at least one child between the ages of 5 and 17 years old. Children must participate with their primary caregiver(s), but a traditional family structure is not required to participate." Sign up for the Happy Families Project
Abigail Isaac, and I'm a co-creator of the Care for Utah's Rare movement Our end goal is to increase funding for disabled children in Utah. Specifically, expanding the reach of the MCCW (Medically Complex Children's Waiver). According to the Kaiser Foundation, Utah provides support for only 15% of all medically complex children. It is not enough.  We plan to put pressure on the state legislature by creating a national movement through social media, and hopefully news networks. As my state representative, Ray Ward said, "They're not going to do anything unless there is public outcry."  What we need is people who can make noise. We need resources and facts.  We would love for medically complex families all over the state to join us. We want people, and our government, to understand that life is hard for us. We want them to understand that there are families who are fleeing our state because they can not afford to keep their children alive here.  We'd love for you to follow our account, share our posts, and fill out our survey.
Dear potential participant,
USU Social Work and the Transforming Communities Institute are conducting a community-based project with a survey to assess Utah residents’ knowledge about trauma and the impacts of trauma. The purpose of this research and evaluation study is to better understand community members’ knowledge about trauma, the impact of trauma, and the extent to which services to address trauma are trauma-informed. In addition, the purpose of this research and evaluation project is to better understand agency staff members’ knowledge about trauma, the impact of trauma, and the extent to which agency services to address trauma are trauma-informed.  The results of this study will inform community stakeholders as we work to address the needs of individuals who have experienced trauma. You qualify for this study if you are 18 years or older and live in the state of Utah. If you decide to participate, you will be asked to complete a 15-minute online survey. Participants will be compensated with a $5 gift card.
To learn more and sign up, visit this link: bit.ly/4vW1q0K
If you have any questions, please contact Dr. Vonda Jump Norman, principal investigator of this study, at vonda.jump@usu.edu or 435-919-1244.