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Publications

Information and Support

Information and Support for Families Navigating Disability

This is the place if you’re looking for comprehensive information about supports and resources for infants, toddlers, children, and youth with disabilities!  We create our resources to include information and connections to the full spectrum of disabilities in children, including developmental delays and rare disorders.

Use the links in this section of the website to open and download our comprehensive guides to all things specific to disability in Utah.

Care Notebook

The notebook is customizable, meaning families can choose or add pages that fit their child’s specific needs, making it a…
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Choices Transition to Adulthood Guide

This is the ultimate guide to your youth's transition into adulthood. Learn to navigate Supported Decision-Making, alternatives to guardianship, SSI…
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Disability Resource Book

The Utah Parent Center Disability Resource Book groups services into key areas: information and advocacy, health care, education, independent living,…
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Guardianship in Utah

The guide helps families understand guardianship and other options. It walks you through what to consider before making a decision…
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Guide to Home and Community Based Waivers

You have certain rights and entitlements while participating in any of the HCBS waivers. The purpose of the waivers is…
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Parents as Partners

Discover the 2025 Parents as Partners guidebook from the Utah Parent Center. This essential resource explains Early Intervention and Special…
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Sibling Journal

The journal emphasizes that sibling relationships can be complex and meaningful, often involving a mix of responsibility, pride, frustration, and…
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Siblings Becoming Caregivers Guide

Use this section to record important personal information, including emergency contacts, communication preferences, and key details that someone would need…
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Successful Transitions For Youth Workbook

A practical guide from the Utah Parent Center that helps families support youth with disabilities as they transition from school…
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Summer Resource Guide

Updated for the summer of 2026, look inside to find activities and support near you when the bus stops coming…
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