parent daughter down syndrome

“Down syndrome is the most common and readily identifiable chromosomal condition associated with intellectual disabilities.It is caused by a chromosomal abnormality: for some unknown reason, an accident in cell development results in 47 instead of the usual 46 chromosomes. This extra chromosome changes the orderly development of the body and brain. In most cases, the diagnosis of Down syndrome is made according to results from a chromosome test administered shortly after birth.

Just as in the normal population, there is a wide variation in mental abilities, behavior, and developmental progress in individuals with Down syndrome. Their level of intellectual disability may range from mild to severe, with the majority functioning in the mild to moderate range.”

Parent Center Hub

It’s very helpful to read more about down syndrome. Following are links to additional information:

Center for Parent Information & Resources

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Down Syndrome Resources

The Center for Parent Information & Resources offers brief, but detailed fact sheets on Down syndrome.  Each fact sheet defines the disability, describes its characteristics, offers tips for parents and teachers, and connects you with related information and organizations with special expertise.


Utah Down Syndrome Foundation (UDSF)

801.446.1994
info@udsf.org
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spanish@udsf.org
PO Box 675, Salt Lake City, UT 84110

The UTAH DOWN SYNDROME FOUNDATION brings families together to build a community and help individuals with Down syndrome reach their highest potential. We provide programs and services for parents and families as well as for individuals with the condition. With knowledge and support, you can be your child’s best advocate.


National Down Syndrome Society
1.800.221.4602
Email: info@ndss.org
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The National Down Syndrome Society is the leading human rights organization for all individuals with Down syndrome.

The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations and become valued members of welcoming communities.

NDSS offers authoritative information about Down syndrome, including A Promising Future Together: A Guide for New & Expectant Parents

National Down Syndrome Congress

800.232.NDSC (6372)
info@ndsccenter.org
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National Down Syndrome Congress (Spanish)

The National Down Syndrome Congress is dedicated to an improved world for individuals with Down syndrome. We are the leading national resource of support and information for anyone touched by or seeking to learn about Down syndrome.

Educate. Advocate. Empower. Inspire.


Band of Angels

248.980.5883
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Band of Angels is dedicated to creating greater understanding of the full and rich lives of people with differences by helping parents, educators, persons with disabilities and medical professionals recognize the true potential of all people.

Providing information including a support group directory.
Resource of Special Note:

Woodbine House publishes an impressive collection of low-cost books and DVDs on Down syndrome, including a Parent’s Guide (in English and Spanish) and materials for teachers. Call 1.800.843.7323