The Utah Parent Center receives many requests to distribute or advertise research and research surveys to our constituency through our email list.  We have set up this web page to provide links to those opportunities to those who may be interested in participating.  Some surveys or opportunities that are provided by our partners or funders may also be sent directly to the email list.

Current Opportunities

  • Language Research Study for youth ages 12-13 years with Language-Learning Difficulties, Rocky Mountain University of Health Professions
    Eligible participants include children between the ages of twelve to thirteen years old who have language-learning disabilities. Participants must have English as their dominant language and have stable internet connection. The study will be investigating the effects of graphic-organizers on higher-level language skills. Participants will receive targeted language teletherapy over Google Meet for no more than 10 weeks.  Contact Kayla M Solo0mon at 562-246-6112 or kayla.solomon@rm.edu for more information and to participate.
  • Mental Health and Disabilities Survey, Institute for Disability Research, Policy and Practice, Utah State University
    Survey is to assess the availability of mental health supports for individuals with disabilities.  Seeking a broad range of respondents, consisting of individuals iwth disabilities, family members, mental health providers and disability service providers including direct support staff.  You are invited to share your experience with Utah’s mental health and disability services systems by completing the survey at:  Survey
  • US Census Bureau – Children’s Health Topics for Parents of Children ages 3-17
    The U.S. Census Bureau is looking for parents and caregivers of children ages 3–17 to give their feedback about questions in a national survey about children’s health topics. We are especially looking for parents or caregivers who meet one or more of the following criteria: Has a child with some degree of permanent hearing loss; and/or has a child who lives in another household at least part of the time; and/or has ever tested positive for COVID-19; and/or has a child who has ever tested positive for COVID-19.The research session will be conducted online using secure videoconferencing.  The session will take about 60 minutes.  We will provide $50 to each eligible person who participates in a 60-minute session.  Federal employees are not eligible to receive the $50.  If you are interested, please complete this short questionnaire. https://research.rm.census.gov
  • US Census Bureau – Children’s Health Topics for Parents of Young Adults ages 18-22
    The U.S. Census Bureau is looking for parents and caregivers of young adults ages 18-22 to give their feedback about questions in a national survey about children’s health topics. We are especially looking for parents or caregivers who meet one or more of the following criteria: Lives in another household at least part of the time; and/or Has a family of their own; and/or Has a disability or special healthcare needs that require a parent or caregiver to stay involved in their healthcare; and/or Is enrolled in some form of post-secondary education that is not college; and/or Has ever tested positive for COVID-19.The research session will be conducted online using secure videoconferencing.  The session will take about 60 minutes.  We will provide $50 to each eligible person who participates in a 60-minute session.  Federal employees are not eligible to receive the $50.  If you are interested, please complete this short questionnaire. https://research.rm.census.gov
  • Applied  Behavior Analysis (ABA) Services/Therapy Study, Whitworth University, Griffin
    The purpose of this survey is to learn from people who have received Applied Behavior Analysis (ABA) services/therapy. A lot of people have strong opinions about ABA, one way or the other.  We are conducting a series of studies to amplify the voices of individuals who have received ABA services and the voices of their parents, with the goal of identifying what is working well, and unfortunately, what is not working well for them.  Participation is voluntary; you may stop at any time and may skip any question. All responses are anonymous. Choose the survey that applies to you:
    Individuals (18+ years) who have received ABA Services
    Parents/Guardians of people who have received ABA services
  • Understanding Family-Professional Partnerships in Low-Resourced Communities – University of Illinois-Urbana-Champaign
    Are you a parent/guardian of a child with a disability in grades K-5 who is enrolled in a public school AND a) receive government assistance such as Medicaid or food stamps, b) you have a high school diploma or lower, c) the primary caregiver in your household is unemployed, OR d) you identify as being from a low-income household. Requirements: Complete questionnaire and phone/Zoom interview.  Receive $30 for participating in this study.  Contact Amanda at anjhnst2@illinois.edu or 815-450-9306.
  • Telehealth Delivery of Treatment for Sleep Disturbances in Young Children with Autism Spectrum Disorder – Cleveland Clinic We are recruiting young children (ages 2 up to 7 years) with autism spectrum disorder and sleep disturbances.  Participants are randomized either to 5 sessions targeted parent training program for sleep problems or 5 sessions parent education program where they will be provided knowledge relevant to parenting a child with autism.  A previously NIH funded study demonstrated the parent training program was superior in improving sleep and bedtime problems.  This study is testing whether this holds when delivered via telehealth. All families will be compensated for their time and participation. As both arms of the study offer families support, please consider passing on our brochures to families who have a young child with ASD and sleep problems. The possible benefits of participation in this study are the improvement of the child’s sleep and bedtime behaviors. To be eligible to participate: Child must be between 2 and less than 7 years of age; Child must have a diagnosis of Autism Spectrum Disorder; Child must have bedtime or sleep disturbance.
    • Please contact the research coordinator at 216-448-6392
  • Measuring Sleep Problems in Children with Autism Spectrum Disorder – Cleveland Clinic, funded by NIH

    We are currently looking for parents to participate in an assessment, which we can do remotely. The purpose of this study is to get a better understanding of sleep problems in children with Autism Spectrum Disorder. We will use the information to develop a new measure for sleep problems in children with ASD. The assessment will last for around 3 hours. This research is funded by the National Institute of Child Health and Human Development (NIH). Families may qualify to participate if they have a child with ASD between the ages of 3-12 with a current or history of sleep related problems (minor or major), and has not started a new medication in the past month.  Please contact research coordinator at 216-448-6392 or at autismresearch@ccf.org.
  • Perspectives on School-Home Communication by Caregivers of Children with Autism – University of Illinois at Urbana Champaign
    We are reaching out to families who might be interested in participating in a one-time, online survey.  The survey will contain questions about your perspectives on the school-home communication you are currently engaged with your child’s current school. Please consider participating this survey if you are: proficient in English AND  have a child that is between the ages of 3 and 21, enrolled in public school and reported to have autism.
    Survey Link: https://redcap.healthinstitute.illinois.edu/surveys/?s=TP7T4LA3NHDY4TKJ
  • Vascular Health and Risk Factors in Children with Down Syndrome
    University of Utah – Primary Children’s Hospital, Division of Pedatric Cardiology

    A study for children with Down Syndrome between the ages of 10-18 which will help us understand the risk factors for heart attack and stroke affect the blood vessels of children with Down syndrome. This may help us to better understand how to prevent heart attach and stroke in these children in the future.  Children who qualify will be seen for a single study visit that lasts about 4 hours at Primary Children’s Hospital.  The study will measure the health of the large blood vessels using ultrasound and non-invasive pressure sensors.  There will be a blood draw to measure markers of blood lipids, glucose and inflammation.  Height, weight and circumference and blood pressure will also be collected.  For more information, please contact Andrea Curless at 801-587-9039 or at andrea.curless@hsc.utah.edu
  • Infants Needed for Study at Brigham Young University
    Dr. Rebecca Lundwall, Cognitive Development Lab, BYU IRB# X2019-427
    We are collecting data from infants who are between 15 and 22 months old and either have: An older, full biological sibling with ASD, or children without a relative with an ASD diagnosis. Study involves:  a fecal sample, a hair sample, a computer task and questionnaires.  Earn between $40 and $175 depending on participation category.  Please contact cogndevelopment@gmail.com or by phone at 801-422-5977.
  • Social Experiences and Satisfaction of Adults with Intellectual Disabilities
    University of Oregon – Sara Hearing
    We want to learn more about people with ID from their own perspective, including: their friendships and social experiences as well as how we can better support them.  This research will include both the caregiver’s and individual’s perspective on the importance of providing social supports to adults with ID. The research takes the form of an approximately 30-minute online survey to be completed by the individual with the disability and their caregiver of choice.  Participants will receive:  a chance to win a pair of $25 Visa gift cards for the individual with ID and their caregiver after the survey has been completed and valuable information about your loved one’s, or client’s, experiences making friends and how satisfied they are in general with their social experiences/supports.
    If you have any questions or think you want to participate , please contact Sara Hearing at shearing@uoregon.edu or at 503-880-4035.
  • Support Parent-Adolescent Relationships and Communication (ND-SPARC) Project
    The Notre Dame SPARC Project
    Over the course of a four-week program, families in the SPARC project get information about conflict and how it can impact marital, parent-child and sibling relationships, as well as information on how to resolve conflict and have more productive conversations as a couple and with their typically developing teens.
    Participation also includes:  Access to research-based information about family communication and conflict, contributing to research by completing surveys and Zoom sessions with our team, and the chance to earn up to $370 for completing the program
    Who is eligible to participate?  Couples who are married living together with: 1) A typically developing child between the ages
    of 10 and 18 AND 2) A Child of any age who has an intellectual or developmental disability.
  • The Relationship of Adaptive Clothing on the Social Participation and Self-Esteem of Adolescents with Disabilities
    Emalee Brown and Dr. Lacee Boschetto, Utah State University
    If your child is between the ages of 13-17, and is someone that fits the criteria of the study population, your child is asked to participate in the study. The study population includes, but is not limited to, the following situations: Currently uses a wheelchair, crutches, braces, or other mobility devices, Currently has a port or colostomy bag, Has other disabilities that affect use of their limbs or torso and/or Has other physical disabilities or impairments that require, or would benefit from, the use of altered or adapted clothing.  This survey is online through Qualtrics, and is designed to provide information on clothing, self-esteem, and social participation of adolescents with disabilities or impairments. The survey will take approximately 10 minutes. No follow-up commitment is required. If your child is not physically able to complete the survey by themselves, you may provide assistance in answering the questions. Children that are not mentally capable of forming their own responses are excluded from this study and do not need to participate.
  • Care for Utah’s Rare
    Abigail Isaac, and I’m a co-creator of the Care for Utah’s Rare movement
    Our end goal is to increase funding for disabled children in Utah. Specifically, expanding the reach of the MCCW (Medically Complex Children’s Waiver). According to the Kaiser Foundation, Utah provides support for only 15% of all medically complex children. It is not enough.  We plan to put pressure on the state legislature by creating a national movement through social media, and hopefully news networks. As my state representative Ray Ward said, “They’re not going to do anything unless there is public outcry.”  What we need is people who can make noise. We need resources and facts.  We would love for medically complex families all over the state to join us. We want people, and our government, to understand that life is hard for us. We want them to understand that there are families who are fleeing our state because they can not afford to keep their children alive here.  We’d love for you to follow our account, share our posts, and fill out our survey.
  • Interactive Social Behavior Assessments Performed by Parents 
    Jack Olson and Dr. Opal Ousley, Emory Autism Center at Emory University
    The purpose of this study is to answer the question of feasibility for parents to perform interactive social behavioral assessments on their own children.  By gathering information from parents that lead to a better understanding of the feasibility and workload of social behavioral assessments when performed by parents on their children.  This assessment is for for parents and their children ages 6-60 months.  To participate you will need to have a small ball (3-4 inches) and a child’s board book (2-4 inches).  The assessment should take approximately 30 minutes to complete.