The Utah Parent Center receives many requests to distribute or advertise research and research surveys to our constituency through our email list.  We have set up this web page to provide links to those opportunities to those who may be interested in participating.  Some surveys or opportunities that are provided by our partners or funders may also be sent directly to the email list.

Current Opportunities

  • Parent Perceptions on School-based Parent Engagement Strategies in Secondary Transition 
    Wen-hsuan Chang and Ya-yu Lo, PhD, University of North Carolina, at Charlotte
    The purpose of this study is to to identify school-parent collaborations, facilitators, and barriers through parents’ perspectives on school-based parent engagement strategies. To be eligible for this study, you must (a) be a parent of at least one transition-aged (ages 14-21) youth with disability(ies) who currently have an individualized education program (IEP) and receive special education services in the United States, (b) live in the United States at the time of the survey, and (b) have access to a computer/tablet and WiFi to access the survey.  You will be asked to complete two-open ended questions about barriers that prevent you from engaging in your child’s school activities in addtion to demographic information.  It will take approximately 20-30 to complete the survey.
  • Interactive Social Behavior Assessments Performed by Parents 
    Jack Olson and Dr. Opal Ousley, Emory Autism Center at Emory University
    The purpose of this study is to answer the question of feasibility for parents to perform interactive social behavioral assessments on their own children.  By gathering information from parents that lead to a better understanding of the feasibility and workload of social behavioral assessments when performed by parents on their children.  This assessment is for for parents and their children ages 6-60 months.  To participate you will need to have a small ball (3-4 inches) and a child’s board book (2-4 inches).  The assessment should take approximately 30 minutes to complete.
  • Experiences and barriers to accessing mental health services for families Maria Martinez and Kim Hager Children’s Friend, Inc., an affiliate of Seven Hills Foundation                                                                                                    For the purpose of our research, we intend to compare three groups – caregivers of children with one or more mental health conditions (including developmental diagnoses), caregivers of children with mental health conditions and common medical conditions, and caregivers of children with mental health conditions and rare diseases. Caregivers include biological parents, adoptive parents, foster parents, step-parents, guardians and kinship homes with children under the age of 18. The survey is nationwide and open to families who live anywhere within the United States. The hope is the survey results will assist mental health providers in tailoring services to meet families’ needs. The study was approved by the IRB and survey is anonymous. Please help us by filling out the survey and/or sharing it.
    English survey:
    Spanish survey:
  • Care for Utah’s Rare
    Abigail Isaac, and I’m a co-creator of the Care for Utah’s Rare movement

    Our end goal is to increase funding for disabled children in Utah. Specifically, expanding the reach of the MCCW (Medically Complex Children’s Waiver). According to the Kaiser Foundation, Utah provides support for only 15% of all medically complex children. It is not enough.
    We plan to put pressure on the state legislature by creating a national movement through social media, and hopefully news networks. As my state representative Ray Ward said, “They’re not going to do anything unless there is public outcry.”
    What we need is people who can make noise. We need resources and facts.
    We would love for medically complex families all over the state to join us. We want people, and our government, to understand that life is hard for us. We want them to understand that there are families who are fleeing our state because they can not afford to keep their children alive here.
    We’d love for you to follow our account, share our posts, and fill out our survey.