Disabilities
Bleeding and Clotting Disorders
Hemophilia and other bleeding disorders cause prolonged bleeding due to clotting issues. With proper care, those affected can live healthy lives. Talk to a specialist if you suspect a bleeding disorder.
What are Bleeding and Clotting Disorders?
Hemophilia A and B and von Willebrand Disease are inherited bleeding disorders that keep blood from clotting properly. These conditions are characterized by excessive bleeding due to a deficiency or abnormality in clotting factors or platelets. Uncontrolled bleeding is serious when left untreated.
Common symptoms of a bleeding disorder can include excessive frequent nosebleeds, prolonged bleeding from cuts, easy bruising, prolonged bleeding with injury or surgery, heavy prolonged menstruation, and bleeding in joints and muscles, sometimes without any known cause. It is important to remember individuals with bleeding disorders do not bleed faster but longer and will need medication to stop the bleeding.
Bleeding disorders can range from mild to severe. Regardless of the severity, a bleeding disorder diagnosis, like any other chronic condition, can be challenging to navigate. However, it is important to know that people living with a bleeding disorder can lead a healthy and full life with proper care and support. Whether you are newly diagnosed or a parent of a newly diagnosed child, knowing what resources are available to you will be critical as you navigate this diagnosis successfully.
If you think you might have a bleeding disorder, talk to your doctor about meeting with an expert. Bleeding Disorder Clinics or Hemophilia Treatments Centers have hematologists that specialize in bleeding disorders and can provide the guidance and treatments you need to live a healthy and active life.
Local Resources
These Utah-based organizations and clinics offer specialized care, support, and community for individuals and families affected by bleeding disorders.
The Utah Center for Bleeding & Clotting Disorders at University of Utah Health
This center cares for adults with hemophilia and other bleeding and clotting disorders.
The Utah Center for Bleeding & Clotting Disorders at Primary Children's Medical Center
The clinician team at this center specializes in the diagnosis and treatment of children with bleeding disorders.
Utah Hemophilia Foundation
Through education, advocacy, outreach, and networking, the Utah Hemophilia Foundation empowers individuals with bleeding disorders to lead healthier and more self-sufficient lives.
Utah Bleeding Disorders Community
The Utah Bleeding Disorders Community Facebook page is a safe place for parents and families of those affected with bleeding disorders to share experiences, challenges, and successes, creating a strong community where you can ask questions and receive support.
Other Support
In addition to local clinics and organizations, several national and international groups offer valuable resources for individuals and families affected by bleeding disorders.
Hemophilia Federation of America
This national organization focuses on the interests of the hemophilia community and provides resources such as advocacy tools, financial assistance programs, insurance help, educational videos, etc.
National Bleeding Disorders Foundation
We are dedicated to finding cures for inheritable blood and bleeding disorders and to addressing and preventing the complications of these disorders through research, education, and advocacy enabling people and families to thrive.
Foundation for Women & Girls with Bleeding Disorders
The Foundation is dedicated to achieving correct diagnosis and treatment of blood disorders and accompanying reproductive problems in women and girls.
World Federation of Hemophilia
This non-profit organization is dedicated to improving and sustaining care for people with inherited bleeding disorders around the world.