Association for Science in Autism Treatment

Website: view website asatonline.org

ASAT is a national, not-for-profit, 501(c)3 organization formed by a group of parents and professionals concerned about the care and treatment of individuals with autism. ASAT is dedicated to disseminating accurate, scientifically valid information about autism and its treatment options.

Autism Assistance Resources and Information

Website: view website autismassistance.blogspot.com

Provides information on grants, financial assistance, funding strategies, and other resources to help families coping with autism.

Autism Council of Utah

Website: view website autismcouncilofutah.org

The Autism Council of Utah is an independent council working to foster collaboration, communication, and learning among families and agencies.  Their aim is to promote access to resources and responsible information for individuals of all ages who have, or are affected by autism, or related conditions. The Council accomplishes this by supporting statewide partnerships to collaborate on special projects, research, and training.

Autism Information Resource at the Utah Parent Center

Website: view website utahparentcenter.org/resources_autism.htm

The Utah Parent Center received resources and a lending library from the Autism Society of Utah when it closed in 2003 to assist families of individuals with autism spectrum disorders. When parents call the Center, they can expect to receive information on autism spectrum disorders, peers support, and access to various resources.

Autism National Committee

Website: view website autcom.org

This organization encourages its individual members and organizational partners toward self-direction and self-empowerment. We welcome the participation of all family members, people with autism/PDD, caring professionals, and other friends who wish to implement, not debate, the right to self-determination by hearing and heeding the voices of people with autism. We have joined together to provide information, support, networking, advocacy, a strong voice in federal legislation and policy, a newsletter, conferences and trainings, a bookstore, a variety of unique publications, and an ongoing reappraisal of fundamental research and treatment issues in the light of what people with autism themselves find meaningful and respectful.

Autism Research Institute (ARI)

Website: view website autism.com

ARI is primarily devoted to conducting research, and to disseminating the results of research, on the causes of autism and on methods of preventing, diagnosing and treating autism and other severe behavioral disorders of childhood. We provide information based on research to parents and professionals throughout the world.

Autism Resource Links

Website: view website autism-resources.com/

Index of links regarding the developmental disabilities Autism and Asperger’s Syndrome; including topics such as: definitions of autism, specific issues, libraries, regional interests, items for sale, and much more!

Autism Society of America (ASA)

Website: view website autism-society.org

The Autism Society of America has been improving the lives of all affected by autism for over 50 years and envisions a world where individuals and families living with autism are able to maximize their quality of life, are treated with the highest level of dignity, and live in a society in which their talents and skills are appreciated and valued. We provide advocacy, education, information and referral, support, and community at national, state and local levels through our strong nationwide network of Affiliates.

Autism Speaks

Website: https://www.autismspeaks.org/

Autism Speaks is dedicated to promoting solutions, across the spectrum and throughout the life span, for the needs of individuals with autism and their families through advocacy and support; increasing understanding and acceptance of people with autism spectrum disorder; and advancing research into causes and better interventions for autism spectrum disorder and related conditions. Autism Speaks enhances lives today and is accelerating a spectrum of solutions for tomorrow.

Center for Parent Information and Resources

Website: view website parentcenterhub.org/

 

There are nearly 100 Parent Training and Information Centers (PTIs) and Community Parent Resource Centers (CPRCs) in the US and Territories

  • Working with families of infants, toddlers, children, and youth with disabilities, birth to 26 (most work with families into adulthood)
  • Helping parents participate effectively in their children’s education and development
  • Partnering with professionals and policy makers to improve outcomes for all children with disabilities

Centers for Disease Control and Prevention

Website: https://www.cdc.gov/ncbddd/autism/index.html

Autism spectrum disorder (ASD) is a developmental disability that can cause significant social, communication and behavioral challenges. CDC is committed to continuing to provide essential data on ASD, search for factors that put children at risk for ASD and possible causes, and develop resources that help identify children with ASD as early as possible.

Different Roads to Learning

Website: view website difflearn.com

Different Roads to Learning is your one-stop shop for autism spectrum resources and teaching materials! With over 600 products, our carefully curated product line supports the social, academic and communicative development of children on the autism spectrum through Applied Behavior Analysis (ABA) and Verbal Behavior interventions.

Do2Learn

Website: view website do2learn.com/

Do2learn provides thousands of free pages with social skills and behavioral regulation activities and guidance, learning songs and games, communication cards, academic material, and transition guides for employment and life skills. In addition, we offer premier products including View2do, JobTIPS, FACELAND, books, and apps for purchase.

Family Voices

Website: view website familyvoices.org

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families–including those of cultural, linguistic and geographic diversity-in order to improve healthcare services and policies for children.

First Signs

Website: view website firstsigns.org

First Signs, Inc. is a national nonprofit organization dedicated to educating parents and professionals about the early warning signs of autism and related disorders.

First Words Project

Website: view website firstwordsproject.com/

FIRST WORDS® Project is a longitudinal research investigation in the Florida State University Autism Institute in the College of Medicine directed by Dr. Amy Wetherby. Our major goal is to identify early signs of developmental language disorders, autism spectrum disorder, and other communication delays in children from 9 to 24 months of age.

Through our research findings and resources provided on our website, we aim to improve screening tools and early detection of communication problems by maximizing the role of the family and to help families support their child’s development and access intervention services sooner.

Global Autism Project

Website: view website globalautismproject.org

Their mission is to bridge the global gap in the resources and understanding of autism. They exist to address the needs of children with autism in developing countries, to address the fear that plagues parents of children with autism where there are few resources, and little or no understanding of autism.

Golden Hat Foundation

Website: view website goldenhatfoundation.org/

The Golden Hat Foundation is a non-profit organization dedicated to changing the way people on the autism spectrum are perceived, by shining a light on their abilities and emphasizing their great potential. With proper education and career training, these individuals can truly realize their dreams.

Interdisciplinary Council on Development and Learning

Website: view website icdl.com

ICDL: The Home of DIR® & DIRFloortime® is a not-for-profit organization dedicated to redefining and promoting each child’s development to their fullest potential.  ICDL is the original and leading training resource for DIRFloortime.

Kids Health

Website: view website kidshealth.org

KidsHealth is the largest and most-visited site on the Web providing doctor-approved health information about children from before birth through adolescence. KidsHealth has separate areas for kids, teens, and parents –each with its own design, age-appropriate content, and tone. There are literally thousands of in-depth features, articles, animations, games, and resources –all original and all developed by experts in the health of children and teens.

MAAP Services for Autism, Asperger’s, and PDD

Website: view website maapservices.org

MAAP Services for Autism and Asperger Spectrum is a nonprofit organization dedicated to providing information and advice to families of more advanced individuals with Autism, Asperger’s syndrome, and Pervasive Developmental Disorder (PDD). Through its quarterly newsletter, The MAAP, the organization provides the opportunity for parents and professionals to network with others in similar circumstances to learn about more advanced individuals within the autism spectrum.

Mayo Clinic

Website: https://www.mayoclinic.org/diseases-conditions/autism-spectrum-disorder/symptoms-causes/syc-20352928

This website gives basic information about autism, signs and symptoms, causes, when to seek help, screening and diagnosis, and treatment.  

Medline Plus – Autism

Website: https://medlineplus.gov/autismspectrumdisorder.html

Medline Plus includes News from the National Institute of Health, Overview of Autism, Diagnosis/Symptoms, Treatment, Alternative Therapy, Rehabilitation/Recovery, Coping, Specific Conditions, Related Issues, Clinical Trials, Genetics, Research, Directories, Organizations, Statistics, Children, and Teenagers.

National Autism Association

Website: view website nationalautismassociation.org/

The mission of the National Autism Association is to respond to the most urgent needs of the autism community, providing real help and hope so that all affected can reach their full potential.

National Autism Center

Website: view website nationalautismcenter.org/

The National Autism Center’s mission is to provide leadership and comprehensive evidence-based resources to families, practitioners, and policymakers, to programs and organizations, and to the national community by adhering to the following commitments:

  • Provide unparalleled resources to individuals and families affected by autism.
  • Support best practice models for nationwide implementation.
  • Shape the national dialogue through the transfer of expertise and knowledge.

National Institute of Mental Health (NIMH)

Website: view website nimh.nih.gov/publicat/autism.cfm

The NIMH mission is to reduce the burden of mental illness and behavioral disorders through research on mind, brain, and behavior. This public health mandate demands that we harness powerful scientific tools to achieve better understanding, treatment, and eventually, prevention of these disabling conditions that affect millions of Americans. Their website includes information on autism and a detailed booklet that describes symptoms, causes, and treatments, is available.

National Center on Birth Defects and Developmental Disabilities

Website: view website cdc.gov/ncbddd/autism/

National Center on Birth Defects and Developmental Disabilities seeks to give people accurate and timely information about public health and the Autism Spectrum Disorders. Includes information for families and kids, research, statistics for autism spectrum disorders, what are the signs of autism spectrum disorders, what conditions are included, what are the causes and treatment, is there a connection between vaccines and autism, and what can you do about early detection of autism spectrum disorders.

National Institute of Child and Human Development

Website: https://www.nichd.nih.gov/health/topics/autism

National Institute of Child Health and Human Development (NICHD) has a goal to provide easy access to the most current information about NICHD research projects, publications, news releases, and other activities related to autism and similar disorders. NICHD’s mission is to ensure that every person is born healthy and wanted, that women suffer no harmful effects from reproductive processes, and that all children have the chance to achieve their full potential for healthy and productive lives. The institute also aims to ensure the health, productivity, independence, and well-being of people through optimal rehabilitation.

National Institute on Deafness and Other Communication Disorders

Website: https://www.nidcd.nih.gov/health/autism-spectrum-disorder-communication-problems-children

The National Institute on Deafness and Other Communication Disorders (NIDCD) is one of the institutes and centers that comprise the National Institutes of Health (NIH). The NIH is the federal government’s focal point for the support of biomedical research. The NIH’s mission is to uncover new knowledge that will lead to better health for everyone. Simply described, the goal of NIH research is to acquire new knowledge to help prevent, detect, diagnose, and treat disease and disability. The NIH is part of the U.S. Department of Health and Human Services.

Pacer Center

Website: view website pacer.org/

PACER Center enhances the quality of life and expands opportunities for children, youth, and young adults with all disabilities and their families so each person can reach his or her highest potential. PACER operates on the principles of parents helping parents, supporting families, promoting a safe environment for all children, and working in collaboration with others.

The P.L.A.Y. Project

Website: view website playproject.org/

The Play Project was designed providing effective, low cost, playful interventions right at home. This website describes the many ways that this project has achieved this mission. There are now a couple of P.L.A.Y. Therapists in Utah.

Unlocking Autism

Website: view website unlockingautism.org/

Unlocking Autism is a national on-line support network and provides information on legislation, advocacy, biomedical treatments, behavioral therapies, research, and has a parent-to-parent support hotline.

Utah Registry of Autism and Developmental Disabilities (URADD)

Website: https://health.utah.gov/cshcn/programs/autism.html

URADD collects and shares information about the number of people who have autism spectrum disorders (ASD’s) and other disabilities in Utah, and measures changes in these numbers over time.

US Autism and Asperger Association, Inc. (USAAA)

Website: view website usautism.com

US Autism & Asperger Association (USAAA) is a 501(c)(3) nonprofit organization for Autism and Asperger education, support, and solutions with a mission to Provide the Opportunity for everyone living with Autism, Asperger Syndrome and other related disorders to achieve their fullest potential, by enriching the Autism and Asperger community with education, training, accessible resources, and partnerships with local and national projects.

Utah Autism Initiative (UAI)

Website: https://health.utah.gov/cshcn/programs/autism.html

The Utah Autism Initiative (UAI) committee is a state inter-agency advisory panel of experts in the field of ASD-related research and treatment. UAI is formed solely to benefit the citizens of Utah affected by or having an interest in ASD. The UAI maintains no commercial interests whatsoever in any party outside the membership of the UAI.

Utah Medical Home Portal

Website: view website medicalhomeportal.org

This website provides comprehensive autism diagnostic information, Utah resources, and referral information for the primary care practitioner, families, educators, and auxiliary health care providers.

PARENT RESOURCES AND HELPS

Caring for the Caregiver

https://autismhopealliance.org/care-caregiver-self-care/

https://childmind.org/article/fighting-caregiver-burnout-special-needs-kids/

https://www.caregiver.org/caregiver%E2%80%99s-bill-rights

view website caregiveraction.org/resources/10-tips-family-caregivers

Behavior

https://www.autismspeaks.org/family-services/tool-kits/challenging-behaviors-tool-kit

view website autismspeaks.org/sites/default/files/section_5.pdf – Positive Strategies

https://www.autisminspiration.com/members/566.cfm – Precision Commands

Early Intervention

Early Childhood Technical Assistance Center (ECTA) view website ectacenter.org/

view website autism-society.org/living-with-autism/autism-through-the-lifespan/infants-and-toddlers/early-intervention/

https://www.autismspeaks.org/family-services/tool-kits/100-day-kit/early-intervention

view website nationalautismcenter.org/autism/autism-interventions/

Executive Functioning

https://www.understood.org/en/learning-attention-issues/child-learning-disabilities/executive-functioning-issues/ebook-executive-function-101

https://www.autismspeaks.org/family-services/tool-kits/asperger-syndrome-and-high-functioning-autism-tool-kit/executive-functioni

Safety

view website nationalautismassociation.org/big-red-safety-box/

view website autismsafety.org/

view website autism-society.org/?s=safety

School – IEPs and Section 504 Plans

view website parentcenterhub.org/iep-overview/

view website parentcenterhub.org/pa12/

view website pacer.org/parent/

https://www.pacer.org/parent/php/PHP-C202.pdf

view website parentcenterhub.org/section504/

Self-Regulation

https://www.understood.org/en/learning-attention-issues/child-learning-disabilities/sensory-processing-issues/trouble-with-self-regulation-what-you-need-to-know

https://childmind.org/article/can-help-kids-self-regulation/

Sensory Processing

https://www.understood.org/en/about/search-results?q=sensory%20processing

https://www.autismspeaks.org/family-services/resource-library/sensory-tools-products

https://childmind.org/article/sensory-processing-faq/

https://www.alertprogram.com/free-resources/

Transition to Adulthood

view website autism-society.org/living-with-autism/autism-through-the-lifespan/transitions/

https://www.autismspeaks.org/family-services/tool-kits/transition-tool-kit

view website parentcenterhub.org/transitionadult/

view website pacer.org/students/transition-to-life/

Visual Schedules

https://www.autismspeaks.org/docs/sciencedocs/atn/visual_supports.pdf

view website do2learn.com/