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Mental Health with a Disability Diagnosis

August 12, 2024

Utah Parent Center

 

Understanding Mental Health

Mental health is very important for everyone, including your loved ones with disabilities. It’s important to know that things around us may affect how we feel and behave. Stress at home, school, or work can change our behavior. So, having a calm and supportive place to live, learn, and work is very helpful.

 

In a recent study, experts say that mental illness among people with intellectual and/or developmental disabilities ranges from 40 to 50%.  Adults with disabilities report 5 times more mental distress than adults without disabilities. 

 

These statistics can be discouraging to parents and physicians who suspect a child has a co-occurring diagnosis. As awareness of Dual Diagnosis increases, healthcare and community support systems have been built to meet the needs of the Dual Diagnosis population. People with Intellectual and Developmental Disabilities (IDD) often need more help and structure in their daily lives.  Without these individuals getting needed supports, behaviors may worsen if routines change. “Small traumas” are also important to consider. These traumas might be small but can be very upsetting, like being teased, being in a very noisy or busy place, or having a sudden change in schedule or staff. 

 

The healthcare system can be confusing and complicated. If possible, choose a clinician familiar with Dual Diagnosis—One who can look at all the possible reasons for the behavior or problem. It is important to work with clinicians who have experience working with individuals who have intellectual and developmental disabilities, as these diagnoses can have similar symptoms to each other and may present differently than in the general population.

In our Transition University Choices and Youth Workbook, there are many mental health resources listed with URL’s and QR codes. Health is located in the BLUE section of each book. Take a look at the books to see if there might be a resource that is new to you.

Please take time to look through these pages and become familiar with the resources.  There are also several apps you can search and put on your phone for help.  Add the phone numbers to your contact list and most importantly reach out when you need support.  Nothing is too small or big to talk to a trusted someone about.  Please ask for help if you or a loved one need any type of support.

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