A Loving Guide for Your Child’s Future

As parents, we do so much for our children every single day. We know their favorite foods. We know what makes them smile. We know what helps when they are upset.

But have you ever wondered, “What would happen if I couldn’t be there?”

That’s where a Letter of Intent comes in.

A Letter of Intent is a simple, written guide about your child. It is not a legal document, but it is very important. It helps other people understand your child’s needs, routines, and the hopes you have for their future.

Think of it as writing down your heart and your knowledge—so someone else can step in and care for your child the way you would want.

The Special Needs Alliance explains that a Letter of Intent helps families share personal details that legal papers do not cover.

Why Is a Letter of Intent Important?

Many children with disabilities grow up to live long, full lives. Some may live longer than their parents. No one can replace a parent—but this letter helps others understand your child better.

It gives comfort.
It gives direction.
It helps keep life steady and familiar.

The Arc of the United States shares planning tools for families thinking about the future. The Utah Parent Center also has information about Estate Planning. 

Questions to Help You Get Started

You do not have to write everything at once. Just start with simple questions:

• Where might my child live one day?
• Will they live on their own or need support?
• Do they want to work?
• What activities make them happy?
• Who are the important people in their life?
• What doctors do they see?
• What medicines do they take?
• Who could help with money or benefits?
• Who could be a guardian or helper if needed?

The National Down Syndrome Congress offers easy planning guides families can use.
👉 https://www.ndsccenter.org/programs-resources/future-planning/

What Can Be Included?

Your Letter of Intent can include:

Family History

Share your child’s story. Who are their close family members? What has shaped their life?

A General Overview

What are your child’s strengths? What do they love? What do they struggle with?

Education

What school supports help? What might learning look like in the future?

Employment

Does your child enjoy helping others? Working with animals? Being active?

Living Arrangements

Where would your child feel safest and happiest?

Social Life

Who are their friends? What hobbies bring them joy?

Religious or Cultural Values

Are there traditions that matter to your family?

Medical Information

Doctors, medications, allergies, routines—write it all down.

Behavioral Supports

What works when your child is upset? What should others avoid?

Long-Term Wishes

Share any thoughts about long-term care or safety.

Important Things to Remember

If this feels overwhelming, take a deep breath.

• There is no “perfect” way to write it.
• You can start small.
• You can update it anytime.
• It will grow as your child grows.

Keep the letter with important papers. Review it once a year. Sign and date it when you update it.

This document is about your child’s happiness and stability. It helps others care for them lovingly and respectfully.

A Final Thought for Parents

You already carry this information in your heart. Writing it down is just a way to protect your child’s future.

A Letter of Intent is not about fear.
It is about love.
It is about planning.
It is about peace of mind.

By taking the time to write one, you are giving your child a lasting gift—guidance, comfort, and care for years to come.