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Sibling Project Care Notebook

April 8, 2025

Utah Parent Center

New Resource for Sibling Caregivers

Caring for a sibling with disabilities can be both rewarding and challenging. Siblings often step into caregiving responsibilities feeling overwhelmed as they navigate complex family dynamics and struggle to find support.

To help make this journey easier, our Sibling Project created the Sibling Project Care Notebook! This is a must-have guide designed specifically for siblings who will be taking over a caregiving role.  

Why This Notebook Is Worth Your Time

Many adult siblings find themselves gradually taking on caregiving responsibilities, from managing medical care to making legal and financial decisions. Others are dropped right in the trenches when their parents pass away & they suddenly assume the caregiver role. The transition, however it starts, can be overwhelming. Staying organized & being prepared as a family makes a huge difference. This care notebook helps streamline essential information, ensuring sibling support and continuity of care.  

What’s Inside?

The Sibling Care Notebook covers key aspects of sibling caregiving, including:  

  • Medical history & emergency contacts – Keep vital healthcare information in one place.
  • Legal & financial planning – Understand guardianship, power of attorney, and benefits like SSDI.  
  • Daily living & routines – Document important details about your sibling’s care needs.  
  • Supported decision-making – Learn ways to empower your sibling while offering the right support.  
  • Family dynamics & communication – Navigate relationships and work together as a team.  

Who Can Benefit?

This notebook is a valuable resource for families with a loved one who has a disability. Parents can download it to help siblings who are stepping into caregiving roles or preparing for the future. It’s also a great tool for adult siblings who know they will one day take on caregiving responsibilities. Completing this notebook as a family ensures that essential information is organized, giving siblings peace of mind knowing they won’t have to start from scratch. Whether you’re sharing caregiving responsibilities or taking the lead, this guide offers practical tools to stay organized and prepared.

Download Your Copy! 

Empower yourself with the knowledge and structure needed to support your sibling effectively. The Sibling Project Care Notebook is more than just a guide—it’s a lifeline for sibling support and navigating evolving family dynamics. 

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