Disabilities
Rare Disorders
Navigating life with a rare disease can be overwhelming, especially for students. With nearly 7,000 rare conditions identified, awareness, diagnosis, and access to support are all essential. We’re here to connect families and educators with the resources that matter.
Understanding Rare Disorders in Education
Rare diseases may be uncommon, but for the students and families they affect, the challenges are very real. Because these conditions are so infrequent, many go undiagnosed or misdiagnosed, and effective treatments—particularly medications—can be difficult to access.
In educational settings, students with rare conditions may qualify for support under the Individuals with Disabilities Education Act (IDEA) if their diagnosis impacts their ability to learn. Since there is no specific “rare disorder” category under IDEA, students must qualify under one of 13 existing disability classifications.
Learning more about rare conditions and the resources available can make a meaningful difference.
Helpful Resources for Families and Educators
Explore these trusted organizations and tools to learn more about rare disorders, special education services, and how to support students with unique needs.