Disability Resources > Bleeding and Clotting Disorders
What are Bleeding and Clotting Disorders?
Bleeding and clotting disorders are conditions that affect the body’s ability to form blood clots properly. When clotting does not work as it should, bleeding can last longer than normal and may require medical treatment to stop.
Common inherited bleeding disorders include Hemophilia A, Hemophilia B, and von Willebrand Disease. These conditions are caused by deficiencies or abnormalities in clotting factors or platelets that help control bleeding. When left untreated, uncontrolled bleeding can be serious.
What Does It Mean to Have a Bleeding Disorder?
People with bleeding disorders do not bleed faster than others — they bleed longer. This is an important distinction. Bleeding may continue after an injury, surgery, or even without an obvious cause, and medication is often needed to help the blood clot properly.
Bleeding disorders can range from mild to severe. While a diagnosis can feel overwhelming at first, many individuals with bleeding disorders live healthy, active, and full lives with proper medical care and ongoing support.
Where do bleeding disorders come from?
Bleeding disorders are usually inherited, but they can also occur without a known family history. Some individuals are the first in their family to be diagnosed.
Common Signs and Symptoms
Signs of a bleeding or clotting disorder can vary depending on the condition and severity. Common symptoms may include:
- Frequent or prolonged nosebleeds
- Easy or excessive bruising
- Bleeding that lasts longer than expected after cuts or injuries
- Prolonged bleeding after surgery or dental procedures
- Heavy or prolonged menstrual bleeding
- Bleeding into joints or muscles, sometimes without a known injury
Recognizing these signs early can help individuals receive appropriate evaluation and care.
Get in Touch with the Utah Parent Center
If you have questions, need guidance, or just want to talk through what’s going on with your child, the Utah Parent Center is here to help. Our services are free, confidential, and focused on supporting families.
Local Resources and Support
Support for bleeding and clotting disorders extends beyond medical care. Local clinics, community organizations, and national groups offer education, advocacy, connection, and practical help for individuals and families. These resources can support you at different stages, whether you are newly diagnosed or managing a condition long term.
Local Resources
The Utah Center for Bleeding & Clotting Disorders at University of Utah Health
This center cares for adults with hemophilia and other bleeding and clotting disorders.
The Utah Center for Bleeding & Clotting Disorders at Primary Children's Medical Center
The clinician team at this center specializes in the diagnosis and treatment of children with bleeding disorders.
Utah Hemophilia Foundation
Through education, advocacy, outreach, and networking, the Utah Hemophilia Foundation empowers individuals with bleeding disorders to lead healthier and more self-sufficient lives.
Utah Bleeding Disorders Community
The Utah Bleeding Disorders Community Facebook page is a safe place for parents and families of those affected with bleeding disorders to share experiences, challenges, and successes, creating a strong community where you can ask questions and receive support.
Other Support
Hemophilia Federation of America
This national organization focuses on the interests of the hemophilia community and provides resources such as advocacy tools, financial assistance programs, insurance help, educational videos, etc.
National Bleeding Disorders Foundation
We are dedicated to finding cures for inheritable blood and bleeding disorders and to addressing and preventing the complications of these disorders through research, education, and advocacy enabling people and families to thrive.
Foundation for Women & Girls with Bleeding Disorders
The Foundation is dedicated to achieving correct diagnosis and treatment of blood disorders and accompanying reproductive problems in women and girls.
World Federation of Hemophilia
This non-profit organization is dedicated to improving and sustaining care for people with inherited bleeding disorders around the world.
Frequently Asked Questions
How do bleeding disorders affect school, sports, or physical activity?
Children and youth with bleeding disorders can usually participate in school and physical activities, including sports, with appropriate planning and precautions. Activity choices may be adjusted based on the individual’s condition and severity. Schools can work with families and healthcare providers to create safety plans that support participation while reducing risk.
What should schools or caregivers know about a bleeding disorder?
It’s important that teachers, school nurses, coaches, and caregivers understand the child’s condition, signs of bleeding, and what to do in an emergency. Sharing clear information and having a plan in place can help ensure safety and confidence across settings.
Are bleeding disorders considered a disability at school?
In some cases, a bleeding disorder may qualify a student for accommodations or services at school if it affects attendance, participation, or learning. Supports may be provided through a 504 Plan or, in some situations, special education services, depending on the child’s needs.
How are bleeding disorders managed during emergencies or injuries?
Management depends on the individual and the specific disorder. Some people may need medication immediately after an injury, while others may require medical attention. Having an emergency care plan and informing caregivers and schools ahead of time can help ensure quick and appropriate response.
Do bleeding disorders affect daily life outside of medical care?
Yes. Bleeding disorders can affect daily routines, travel, dental care, and planning for activities. Learning how to manage these situations over time helps individuals and families feel more prepared and confident navigating everyday life.