The Utah Parent Center receives many requests to distribute or advertise research and research surveys to our constituency through our email list. We have set up this web page to provide links to those opportunities to those who may be interested in participating. Some surveys or opportunities that are provided by our partners or funders may also be sent directly to the email list.
- Caregiver Experiences Supporting Learning of Students with IDD
Dr. Esther Lindstrom, Lehigh University and Dr. Jenny Root, Florida State University
The purpose of the study is to learn how parents and caregivers of students with intellectual and developmental disabilities have been supporting remote learning during the Covid-19 pandemic, and any challenges and opportunities during this time. You are eligible to participate if you are the parent, guardian, or primary caregiver of a student (kindergarten-age 21) with an intellectual or developmental disability (e.g., autism, intellectual disability, genetic disorder, multiple disabilities, etc.). You must live in the United States to participate. If you agree to participate in this study, you will be asked to fill out a survey about your experiences supporting your child during remote instruction during the Covid-19 pandemic. This will take about 10 minutes.
- Parent Perceptions on School-based Parent Engagement Strategies in Secondary Transition
Wen-hsuan Chang and Ya-yu Lo, PhD, University of North Carolina, at Charlotte
The purpose of this study is to to identify school-parent collaborations, facilitators, and barriers through parents’ perspectives on school-based parent engagement strategies. To be eligible for this study, you must (a) be a parent of at least one transition-aged (ages 14-21) youth with disability(ies) who currently have an individualized education program (IEP) and receive special education services in the United States, (b) live in the United States at the time of the survey, and (b) have access to a computer/tablet and WiFi to access the survey. You will be asked to complete two-open ended questions about barriers that prevent you from engaging in your child’s school activities in addtion to demographic information. It will take approximately 20-30 to complete the survey.
- AAC (Augmentative and Alternative Communication) Caregiver Training Survey
Emily Sheridan and Dr. Alexandra Da Fonte, Vanderbilt University
The purpose of this study is to to gather primary caregivers’ perspectives on the training received (if any), to support and enhance their child’s communication skills. By gathering information and variables that lead to positive and negative experience we hope to make recommendations and to outline key elements to minimize experiences that may be contributing to high levels of communication system abandonment and decrease the impact these systems may have on the family. The survey will take approximately 20-30 minutes to complete.
- Interactive Social Behavior Assessments Performed by Parents
Jack Olson and Dr. Opal Ousley, Emory Autism Center at Emory University
The purpose of this study is to answer the question of feasibility for parents to perform interactive social behavioral assessments on their own children. By gathering information from parents that lead to a better understanding of the feasibility and workload of social behavioral assessments when performed by parents on their children. This assessment is for for parents and their children ages 6-60 months. To participate you will need to have a small ball (3-4 inches) and a child’s board book (2-4 inches). The assessment should take approximately 30 minutes to complete.